So it’s been a while, right?
Yes, it has.
And I’m testing the waters again. I’m trying to decide if I’m ready to write again or just go ahead and delete this whole thing — after saving it to disk, of course, because otherwise how would I know about all those things I thought were important enough to write about and then immediately forgot?
And you know what?
The water is feeling mighty good…
We finally have a diagnosis, and I cannot tell you how wonderful it feels to me to finally have a name for what is “wrong” with my son. I finally have a word to help describe him. It in no way defines him, but it does help others understand him.
My emotions are all over the place regarding his diagnosis. I can’t even tell you everything I’m feeling right now. I don’t think I have all of the words necessary to convey my feelings, so I won’t even try.
I’ll be on just Twitter for a little while. Blogging has been too much. You can read my brief updates here ———————————————>
I hope you have a great holiday.
I haven’t been able to come here and write for a while. It was just too daunting for me to come and write about my daughter’s ordeal. So in classic me fashion, I avoided the whole thing. Because things go away when you ignore them, right?
But because things don’t seem to go away often enough for me, I’m here to say that we have discovered that my daughter has started early puberty. She’s not all the way there (ie: no menstruation) but at the age of seven her bone growth is that of a ten year old’s. So we’ll have to do something to stop puberty until her calendar age catches up with her body’s age. Which, being the excellent mathematician that I am, I figure will be about three years.
Three years of hormone injections.
But first we have to determine what has started the hormones coursing through her body to come early. Which means that the week after Christmas will be filled with blood draws and injections. And maybe an MRI. The doctor was sure to tell me that 95% of the cases are as simple as the body releasing the hormones early, but there is the 5% chance that it’s because of a tumor. Hence the MRI.
Also, hence the insomnia I’ve been dealing with.